Discover tools for
living with HAE
Hereditary angioedema (HAE) resources, just for you
Living with a rare disease can sometimes mean you don’t have easy access to the information, resources, and support you need. That’s why we’re creating a growing list of helpful material that can support you in your journey with HAE.
HAE Assessment Tool
Answer a few questions and bring the results to your doctor so he or she can better understand how HAE is impacting your life.
DOWNLOADEmergency medical card
If you live with HAE, planning for an emergency can help you feel prepared. Ask your HAE-treating physician to fill out your emergency medical card with your specific treatment plan and his/her emergency contact information.
DownloadHAE family brochure
This helpful brochure can help you explain the hereditary aspect of HAE and how important it is for family members to get an HAE blood test.
DOWNLOADHAE family health tree worksheet
Use this resource to gather vital information about your family's history of HAE.
DownloadPhysician letter
Consider asking your doctor to fill in this letter outlining your condition and treatment plan. It can come in handy with everything from going through TSA when you're traveling to helping explain your situation to someone who's not familiar with the condition.
DownloadHelp finding an HAE specialist
Few doctors are familiar with diagnosing and helping people manage HAE. If you need help finding a doctor who knows about HAE, the HAEA provides a simple online tool that can help.
DOWNLOADEquitable care in HAE
Learn how Takeda is working to improve the standard of care and address health care disparities in rare diseases.
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