Discover tools for
living with HAE
HAE resources, just for you
Living with a rare disease can sometimes mean you don't have easy access to the information, resources and support you need. That's why we're creating a growing list of helpful material that can support you in your journey with hereditary angioedema (HAE).
HAE Assessment Tool
Answer a few questions and bring the results to your doctor so he or she can better understand how HAE is impacting your life.
Start the HAE assessmentEmergency medical card
If you live with HAE, planning for an emergency can help you feel prepared. Ask your HAE-treating physician to fill out your emergency medical card with your specific treatment plan and his/her emergency contact information.
Download the medical cardHAE family brochure
This helpful brochure can help you explain the hereditary aspect of HAE and how important it is for family members to get an HAE blood test.
DOWNLOAD THE HAE FAMILY BROCHUREHAE family health tree worksheet
Use this resource to gather vital information about your family's history of HAE.
Download the HAE family worksheetPhysician letter
Consider asking your doctor to fill in this letter outlining your condition and treatment plan. It can come in handy with everything from going through TSA when you're traveling to helping explain your situation to someone who's not familiar with the condition.
Download the physician letterHelp finding a doctor
Few doctors are familiar with diagnosing and helping people manage HAE. If you need help finding a doctor who knows about HAE, the HAEA provides a simple online tool that can help.
Use the HAE physician finderDisease education brochure
Learn about the cause, symptoms and management of HAE.
Download disease education brochureAdvance HAE app from the HAEA
The US Hereditary Angioedema Association (HAEA) has created an app that makes it easy to keep your own personal record of life with HAE. The app stores all of your information on your HAE attacks and your HAE therapy/therapies. The app also allows you to create personalized, user-friendly graphs of the data you enter.
Learn more about the HAE app
